I was out grocery shopping today and my cell phone rings. It was my doctor. He said that he had sent my case to a Dr. Iseman at the National Jewish Hospital in Denver for review as well as some questions. Dr. Iseman is a specialist in pulmonary and respiratory diseases. Dr. Iseman said that I have the typical sarcoidosis case. He said that the MAI is nothing to be concerned about. He said considering where I live, it does not surprise him that it has shown up. He said we are doing the treatment right and to continue to watch for any other signs of MAI.
My doctor asked how I was feeling, and I told him not any better. He said tomorrow when I come in, they are going to double the dosage of the steroids. I asked if the anxiety and horrible fatigue is part of it, and he said it is, and we can discuss giving me something for it!!!
As much as I've complained about my doctor, I have to say that I am quite impressed with how he's going out of his way to find outside help with my case. I feel like such a weight has been lifted. I don't feel like anyone thinks I'm "nuts" now (even though I know I am...but it's the medicines fault!)!! I am so happy to have received this news today and see how things will go from here!!